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www.pbcnews.info is a German-language patient-led online resource for PBC patients, their friends and families, operated by Kautz5 gUG since 2017. The site provides patient-relevant disease information, patient support materials (all available for download), and a list of physicians specializing in PBC management. All content is reviewed by a scientific panel of experts. The website is supplemented by several additional community building formats (online meetings and seminars).
Since its launch, this online community has successfully grown to a considerable reach: in 2022, the site had a total of 39,000 visitors, of which 34,000 were unique visitors and 5,000 were regular visitors.
The site is supported by Advanz Pharma and GSK.